Projects & Initiatives

    Self-Direction Frequently Asked Questions

    TOPICS:
    Billing and Reporting Questions
    Employment Related Questions
    Service Eligibility Questions
    Service Provision Questions
    Financial and PRA Related Questions
    Service and Budget Approval Process Questions
    Miscellanous Questions

    Frequently Asked Questions (FAQs) on FI and Self-Directed Services

    Billing and Reporting Questions
    Q:
     According to the most recent Guidance Document, “The FI will require utilization information for services delivered by other agencies to be reflected in the person’s expenditure reports.”

    What is the FI’s responsibility to ensure expenditure reports accurately reflect services delivered by other agencies and what is the FI’s liability, if any, if another agency exceeds the authorized expenditure level?

    A:While the FI does not deliver those services, it has a responsibility to monitor and track any services included in a SD plan. The FI may face liability if the PRA is exceeded or if any particular service, such as Community Habilitation, exceeds authorized levels. It is important for the FI to establish working relationships with other providers that allow it to monitor and track services delivered by those providers.

    Employment Related Questions
    Q: 
    The Guidance Document states that a Live In Caregiver may not be related by “blood or marriage” to a SD participant nor may a “family member” provide Paid Neighbor supports. Elsewhere in New York’s waiver, an exception to these exclusions is provided:

    In extraordinary circumstances, the following are exceptions to this policy:

    -The Commissioner or designee may authorize a parent or legal guardian of an adult child (over the age of 18) to be paid to provide waiver services, when it can be clearly documented that the arrangement is in the best interests of the participant.

       -The Commissioner or designee may authorize an otherwise qualified relative who resides in the same residence as the participant to be paid to provide waiver services when it can be clearly demonstrated that the arrangement is pursuant to the participant's choice, is in the best interests of the participant, and does not potentially jeopardize the health, safety, rights and informed choice of the participant.

    Does this process to seek an exception also apply in SD? If not, why are SD participants not offered the same service exceptions as other persons enrolled in the waiver?

    A. These exceptions are not applicable to the Live-In Caregiver and Paid Neighbor services. Family members are explicitly restricted from providing those services.

    Q: The Guidance Document states that a person who provides the IDGS “Staffing Support cannot otherwise be employed by a not for profit agency”.  Please clarify the intent and meaning of this restriction.

    A: The intent of the restriction is to avoid conflicts of interest. It applies to employees of providers other than the FI or, employed by the FI in roles other than the provision of Self-Hired Community Habilitation, Respite or Supported Employment. It also applies to employees of any not for profit organization, whether or not that organization is involved in the delivery of supports to persons with I/DD.

    Q: Are persons who provide Staffing Support considered employees or contractors of the FI?

    A: OPWDD does not generally provide legal guidance on human resource or wage and hour questions. This question should be referred to the FI’s Human Resource Department and to its human resource counsel.

    Q: During a hearing for an employee who provided both Community Habilitation and Paid Neighbor services, the Department of Labor indicated that the person should be treated as an employee when providing either service.

    A: OPWDD does not generally provide legal guidance on human resource or wage and hour questions. This question should be referred to the FI’s Human Resource Department and to its human resource counsel. Another good resource is NYSACRA’s Toolkit for Providing Shared Living in New York. The toolkit can be found on the NY Alliance for Inclusion and Innovation at www.nyalliance.org.

    Q: May a FI contract with a staffing company to serve as the employer of record for direct support workers hired by individuals doing self-direction?It would still manage all other FI tasks (working with the individuals on their budget, etc.).

    A: Such a contract would be permissible. OPWDD would still view the Self-Hired staff as co-employed between the individual and the agency.OPWDD would advise a FI considering such an arrangement to consult with human resource professionals and attorneys to insure compliance with all applicable wage and hour laws and regulations.

    Service Eligibility Questions
    Q:
    Why are children under the age of 18 prohibited from accessing the OTPS category of Personal Use Transportation?

    A: There is no explicit restriction on children under the age of 18 accessing Personal Use Transportation. However, in general, OPWDD considers routine transportation unrelated to valued outcomes to be part of a family’s responsibility. If Personal Use Transportation is part of a child’s SD budget, such transportation must be related to a Valued Outcome, as documented in the child’s ISP.

    Q: May a SD participant who still lives in the family home with family members receive Live in Caregiver supports?

    A: A participant who lives with family members in the family home is eligible for Live In Caregiver supports, with caveats.

    First, no family member may provide Live In Caregiver support.

    Secondly, as stated in ADM 2016-3, the participant must “live in his/her own home or leased residence” and must be “directly responsible for the residence”. This might be achieved, for example, if the family leases the residence and the SD participant’s name appears on the lease as a lessee. In this example, the participant may also qualify for a housing subsidy.

    Similarly, if the participant leases an in-law type apartment from his or her parents, the participant could be eligible for Live In Caregiver supports. The apartment must be a legal dwelling according to local law and regulations and otherwise legally rentable to any person in the community.

    Or, if the family home is owned by a trust and the participant’s name appears on a lease between the family and the trust, Live In Caregiver supports may be provided.

    Finally, a participant cannot lease just a room from his or her family. As stated above, the residence must be a legal dwelling.

    Q: Can the costs related to attending a conference be reimbursed through a SD budget?

    A: Yes, a conference may be considered a Community Class within the IDGS category, if it meets the four criteria specified in the Guidance Document. If it meets those criteria, registration fees for a conference may be reimbursed as could travel costs to and from the conference if they meet the Guidance Document criteria. In no instance, however, are separatelodging costs reimbursable as they are considered to be activity fees and therefore are not reimbursable.

    Q: We recently heard from one of our liaisons that a participant is not eligible for Agency Supported Community Habilitation for their day service if he/she has a “residential only” budget. We believe this is institutional bias, because someone who lives in an IRA can have ASCH for their day service. This is how we have been supporting people who need 24/7 supports. How can this be rectified?

    A: A person with a “residential only” budget is indeed eligible for Agency Supported Community Habilitation. See the table on page 51 of the most recent Guidance Documentwhich lists the services available within each type of self-direction budget. The Community Habilitation ADM governs these services.

    Service Provision Questions
    Q: 
    May a Live In Caregiver provide support with physical dependency needs or Activities of Daily Living?

    A: The role of a Live In Caregiver does not include providing support with activities of daily living. However, there is no prohibition on an individual who is a Live In Caregiver also providing other waiver services, such as Community Habilitation.  Live In Caregiver and Community Habilitation are discrete waiver services and may be provided by the same individual to one participant.When exploring these types of dual role situations, it is important that the provider is aware of and complies with the applicable labor laws relating to caregivers living in an individual’s home.

    Q: Can a person providing Paid Neighbor supports also provide Community Habilitation services to the same individual?

    A: Yes, that is core concept of the Paid Neighbor support. Paid Neighbor, within Individual Goods and Services (IDGS), is an on-call stipend. If the paid neighbor is called to duty, they need to be paid for the delivery of self-hired or agency supported community habilitation for the time worked. IDGS and Community Habilitation do not duplicate eachother.

    Financial and PRA Related Questions
    Q: Does the Social Security Administration consider the Housing Subsidy to be income to the person?

    A: As long ago as 1994, then OMRDD reached an agreement with the Social Security Administration and with the then New York Department of Social Services that ISS services will not adversely affect a person’s Social Security eligibility, benefit level or Medicaid eligibility.

    Q: Is there an annual cap on Support Broker services?

    A: There is no annual cap on Support Broker services. However, since their costs count against the participant’s Personal Resource Account, care should be taken when considering how much to budget in this category. And it is important for the FI to beware of potential abuse of this service…if requested hours of SB services appear excessive, the FI should require justification.

    There is an annual cap of $2400 on Start Up broker services. This does not count against the participant’s PRA.

    Q: We have been told that SEMP and Respite rates are determined by the location of the FI and not by the location of the service recipient. Please clarify.

    A: SEMP fees are determined by the program that the individual is enrolled in and which OPWDD region this program falls.  This would mean that if an individual is enrolled in a SEMP program designated as being in NYC, the cap associated with Self-Hired SEMP would be OPWDD Geographical Region 1, even if the FI agency is headquartered in Franklin County in OPWDD Region 3. 

    For Non-Self-Hired Respite fees are determined by where the provider is headquartered and which DOH region this falls.  This would mean that even if an individual lives in NYC, the fee associated would be DOH Region 4 if the individual’s FI agency is located in Franklin County.

    For Self-Hired Respite the billing is based upon the county in which the individual lives.  This would mean that if an individual lives in Queens, the cap associated with Self-Hired Respite would be DOH Region 1, no matter where the FI is located.

    Community Habilitation fees are determined by where the individual lives.  This means that for an individual living in NYC and receiving Self-hired Community Hab, the cap associated would be OPWDD Geographical Region 1, no matter where the FI is located.

    Please note that although OPWDD oversees the services, the development of rates and fees is a function of the Department of Health.  They use various models and methodologies to determine the reimbursement to providers.

    Q: When people go over their budget in a particular category, and it is not an option to try to move money to cover the overage (for example, a full budget amendment is needed and therefore the effective date can’t be retroactive) is the FI expected to pay back the billing if overall, the person is within their PRA? Would the answer be different if the individual is over their total PRA?

    A: FI’s are responsible for tracking expenditures and reporting them in a timely fashion. It is important that FI’s insure adherence to authorized service levels and should institute audit protocols and internal controls to insure such adherence.

    Service and Budget Approval Process Questions
    Q:
    What can be done to make the approval process for brokerage, budgets and budget amendments more transparent and easier to track? For example, can OPWDD require both DDRO’s and FI’s to acknowledge receipt of submissions, with time stamps and provide estimated time to review and approve (or disapprove)?

    A: OPWDD does not govern the business operations of FI’s. Participants and their families are customers of FI’s and can ask them to provide services such as receipts and time stamps. Transparency with participants and their families is a best practice.

    OPWDD has not considered requiring DDRO’s to provide services suggested in this question and will take it under advisement.

    Miscellaneous Questions
    Q:
    Will there be a way to fund housing navigators going forward?

    A: Housing Navigator service could be a reimbursable service under the following parameters:

    1. OTPS:

    “People who are self-directing their services with Budget Authority may elect to use up to $3,000 in 100% state funding for items that are not Medicaid-fundable. This budget category is called “Other Than Personal Services” or OTPS. Housing Navigation (“HN”) services; housing access start-up services, development of an individual housing action plan and or implementation of the housing action plan are eligible to be funded through OTPS for people with Self-Direction budgets.

    Where HN services could also be delivered by a Broker or Community Habilitation (CH) staff as part of their responsibilities for those services, those Brokers or CH staff may not separately charge for HN services through OTPS.

    To summarize; HN services can be provided by the Broker or the CH staff, if qualified, or be paid separately as OTPS. The Broker or CH staff may not separately charge a person they provide HN services to through OTPS.”

    2. Support Broker:

    If you are a Support Broker, and HN is part of someone’s plan, you can bill for HN work performed at the Support Broker rate. Housing navigation work is typically work that could be completed within the broker role. Brokers could do housing related tasks and be reimbursed through an SD plan. The billing would be for the broker service – the tasks completed would be housing related.

    3. Community Habilitation Services:

    If an individual is receiving Community Habilitation (CH), and the ISP includes Housing as a goal and Housing Navigation (HN) as a way to get to it you can pay for that time with Comm. Hab. If direct, then it must be in person and focused on a specific ISP goal. If Indirect, then it must also align with the goals. The methodology for covering the indirect cost would vary based on whether the CH staff support is through agency supported/purchased or through self-hired staffing. The provider or FI would need to manage the indirect elements of the service depending on the method used. Again, the service provided is CH not HN the CH service needs to relate back to a valued outcome and activity under the service to meet that outcome.”

    *Housing Navigators- professionals that have expertise in the development and implementation of an individual housing action plan.

     

    1/17/2018

    Supported Decision Making & Alternatives to Guardianship

    Supported Decision- Making & Alternatives to Guardianship

    What is supported decision-making?

    Supported decision-making is not a strange, new thing, but rather a process by which a person with an intellectual or developmental disability can be supported in making his or her own decisions. Supported decision-making draws on our common experience of consulting or seeking assistance from others when we make decisions or choices in our own lives. Whether it is renting an apartment, buying a car, or choosing to get married, we do not make decisions in a vacuum, but rather with "support" from friends, family and/or experts of some kind.

    People with intellectual or developmental disabilities also have a right to make their own choices and decisions, but may need more, or different kinds of support to do so. Supports may include helping a person access information that is useful or necessary for a decision, helping her weigh the pros and cons, assisting in communicating the decision to third parties, and /or in carrying it out. But the decision is always the person’s (who we call the "decision-maker") and not the supporter’s.

    One common form of supported decision-making involves the decision-maker identifying and choosing a person or persons whom she wishes to support her in various areas. For example, she might wish one person to support her with regard to finances, another with health care, and a third with intimate relationships. There is no limit to the number of supporters a decision-maker may choose, but usually it is between one and 10. Supporters are frequently family members, and might also include friends, peers, neighbors, or service providers, but the relationship must always be one based on trust.

    Often the arrangement is reduced to writing in what is called a “supported decision- making agreement” which spells out the rights and obligations of the parties, including an understanding by supporters that they are to assist the decision-maker, but never to substitute their own decision in lieu of hers. Although not yet legally binding on third parties (like banks or healthcare providers) in New York, supported decision-making agreements, and the relationships that underlie them may be used as an alternative to guardianship, where, literally all of the rights of persons with disabilities are taken away.

    Supported Decision-Making New York (SDMNY)

    The Supported Decision-Making Project, funded by a five year grant from the NYS Developmental Disability Planning Council, is run by an innovative consortium between Hunter College/Cuny, New York Alliance for Inclusion and Innovation (formerly NYSACRA), Disability Rights New York, and Arc of Westchester.

    The main focus of the project is aimed at increasing awareness of SDM as an alternative to guardianship for persons with I/DD, and to implement two parallel SDM pilot programs designed to divert transition-age youth with I/DD from entering guardianship, and to help restore the rights of adults with I/DD already under guardianship. The project partners will use the results of these pilots, which will begin in NYC and roll-out to several statewide locations, to create educational materials for a variety of stakeholders—including persons with I/DD, their parents and family members, professionals in special education, lawyers, judges and the court system, legislators—and disseminate them through information sessions for interested groups, webinars hosted on sdmny.org, conference presentations, and an active social media awareness-raising campaign.

    By project’s end, the partners hope to have established a viable model for providing access to SDM for persons with I/DD in New York, and to have either prevented a significant number of persons with I/DD from entering into guardianship or helped them remove their guardianship orders, thereby enhancing their opportunities to maximize their autonomy and independence.

    For more information on Supported Decision Making or to get involved go to www.sdmny.org or contact Desiree Loucks Baer at dloucksbaer@nyalliance.org.

    New York Housing Resource Center

    NYHRC Logo

    The New York Housing Resource Center (HRC) for People with Intellectual / Developmental Disabilities was developed by NYSACRA with funds received through the Balancing Incentive Program grant (BIP).

    The HRC acts as a clearinghouse for information and resources for the housing professional across the state and will help to foster collaboration between and among the housing industry and related professions, service provider agencies and people with I/DD.

    The HRC provides all housing stakeholders with technical assistance on housing matters and community training for people with Intellectual and Developmental Disabilities and their families.

    Visit the NY HRC Website: www.nyhrc.org

    Shared Living Toolkit

    A toolkit for providing shared living in New York State: Click Here to Download

    UPDATE:
    Our Shared Living Toolkit Now Addresses Tax Treatment of Wages

    In January, 2014, the Internal Revenue Service (IRS) issued Notice 2014-7, which addressed what the IRS has for decades called Difficulty of Care (DoC) Payments. Under Section 131 of the IRS Code, a DoC was (and still is) “compensation to a foster care provider for the additional care required because the qualified foster individual has a physical, mental or emotional handicap.” This compensation is excludable from the taxable wage income of the provider for federal income tax purposes.

    The 2014 Notice expanded the definition of foster care providers and individuals and DoC payments. The result is that wages paid to providers of Shared Living supports who meet certain criteria will be treated as DoC payments. Therefore, they are excludable from providers’ taxable wage income for both federal and New York State income tax purposes. That is, they do not have to pay income taxes on those wages. While it’s unclear what the passage of tax reform legislation will mean to shared living, the New York Alliance is committed to informing our members as to any impact.

    The New York Alliance has recorded a 4-minute webinar which addresses these changes.

    Learning Institute

    Learning Institute on Innovation and Individualized Supports for Persons with Complex Needs - A Learning History Final Report: Click Here to View

    Marist College Partnership

    New York Alliance Academic Partnership with Marist College


    Click Here to Learn More About the Marist Academic Partnership

    In 2018 two amazing organizations, NYSACRA and NYSRA, joined together to form one powerful voice for people with disabilities. The New York Alliance for Inclusion and Innovation envisions a society where individuals with disabilities are contributing citizens with equal rights and the ability to live full, productive and meaningful lives. It is their mission to serve as a catalyst for positive change and be a leading resource for individuals with disabilities, their families, and the organizations supporting them.

    The New York Alliance for Inclusion and Innovation values the communities in which they serve. They inspire creativity and innovation as well as build strong relationships and strategic alliances so that individuals with disabilities can thrive in our community. The New York Alliance is an advocate and voice for all people with disabilities. They shape sound public policies which respond to people’s needs and support initiatives which advance positive, high-quality outcomes.

    As a way of saying "thank you" to New York Alliance for Inclusion and Innovation members who reside in our community, Marist College is offering special tuition pricing for all members and their immediate adult family members.

    Special Tuition Pricing for Members

    New York Alliance for Inclusion and Innovation members and their immediate adult family members will receive the following benefits:

    • A tuition discount on eligible graduate and adult undergraduate degree programs. For our complete list of eligible programs and discounted pricing visit our eligible programs and pricing page.
    • Options for Full-Time and Part-Time Master's and Bachelor's degree programs offered 100% online, in-class or a mix of both.
    • Enjoy state of the art classrooms for our Bachelor’s and Master’s programs offered on our Main Campus in Poughkeepsie, NY.  We also offer a classroom-based MPA option at our satellite locations in Queens, NY, and Albany, NY.

     

    Eligibility

    New York Alliance for Inclusion and Innovation members and their families must show proof of membership in order to qualify for the partnership tuition rate.

    Adult undergraduate students are defined as students who began their Marist academic career at age 22 or older and who are applying through the Office of Adult Undergraduate Admission. Graduate students are those students who are initiating an application for a stand-alone masters degree through the Office of Graduate Admission.

    Final determination of eligibility is made by Marist College.

    Complete our online inquiry form to receive more information. All contact information provided is confidential.

     

    Programs Offered

    Marist College offers students a variety of programs on-site and online for both graduate and adult undergraduate (ages 22+) learners.

    Please visit our eligible programs page for more information.

    College of Direct Support

    New York Alliance of Inclusion and Innovation is pleased to announce the Spring session of the College of Direct Support will begin March 01, 2018.

    NY Alliance has designed a guide to core competency online learning called Investing in a Professional Workforce. The guide provides an overview of the College of Direct Support, an overview of how the College of Direct Support works, and a list of the curricula.

    To download a copy of the guide click here. The spring registration form can be downloaded by clicking hereDeadline for registration is February 23, 2018.

    The registration form can be e-mailed to Stacy at stacy@nyalliance.org. You may also e-mail Stacy with learners name(s), and which module(s) the learner(s) will be taking. 

    Agencies that provide services and supports in New York State should be particularly pleased with the opportunity to participate in the College of Direct Support, since the content of the CDS training aligns with the state required core competency implementations criteria (OPWDD Administrative Memorandum #2014-03).

    To learn more about this requirement click here for a letter from Ann Hardiman, President & CEO of the New York Alliance for Inclusion & Innovation. 

    If you have any questions about The College of Direct Support, please contact Lisa Mount at 518-417-4055 ext. 1505 or by e-mail at lmount@nyalliance.org

    Regional Centers for Workforce Transformation

    RCWT Logo

    The RCWT are regional collaborations that were established in 2013 with the mission of advancing the practice of the NYS Code of Ethics and the Core Competencies among the state’s Direct Support Professionals and to assist agencies in building DSP capacity in the changing service landscape within the field.  They are coordinated by the NYS Association of Community and Residential Agencies (NYSACRA) through funding provided by NYS Office for People With Developmental Disabilities (OPWDD).

    The RCWT will continue to build on the successes of their first three years with the following Regional Leaders:

    Region 1: Melody Johnson, Arc of Monroe; Erica Belois-Pacer, The Center for Human Services Education; & Theresa Buick, Heritage Christian Services

    Region 2 South:  Jennifer Parsons, Development Resource Unites

    Region 2 North: Jennifer J. Vogt, Jefferson Rehabilitation Center

    Region 3: Perry Samowitz, Staff Development Consultant

    Region 4:  Sonja Williams, YAI Seeing Beyond Disability

    Region 5: Pamela Wolff-Stackowitz, YAI Seeing Beyond Disability and Denise Anghel, YAI Seeing Beyond Disability

     Visit: www.workforcetransformation.org

    Transformation Project - NYSRA

    Transformation 2.0 is the natural evolution of the NYSRA Transformation Project and funded through the original OPWDD-issued Balancing Incentive Program grant.  Originally designed to provide intensive technical assistance to the 12 NYSRA member agencies, the NYSRA Transformation Project has now been approved by OPWDD to exand its scope and offer enhanced technical assistance for all New York State agencies that provide employment supports to individuals with developmental disabilities.

    Through Transformation 2.0, organizations will be able to access the tools and resources they need to revise the employment narratives for people with disabilities into stories of career success. Simultaneously providers will be able to develop new narratives for themselves as they explore different ways of offering employment supports and reasonable accommodations, assuring fiscal sustainability, and developing strategic business partnerships.

    Providers who choose to continue their individual transformation journeys will be able to access additional and more intensive supports that target the unique strengths, challenges, and mission goals of each organization.

    Visit the Transformation 2.0 Website Here: http://nyrehab.org/NYSRA_Transformation_2.0